Engagement
Introduction
As we carried out our public engagement throughout the course of our project we wanted to address two questions in order to make our activities in this area meaningful and useful. Who do we need to talk to and what do these people want or need to know?
We carried out a survey to find out which aspects of the project public were least familiar with to provide a focal point for our engagement activities. We split the responses into two categories according to the age of respondents; under 21 and over 21 as many of the older groups had very few members. From this survey we found that 90% of people had heard of genetic engineering but we found that people in the younger group were more likely to have heard of genetic engineering and, in a further question, were more likely to be prepared to take a genetically engineered bacterium as a medical treatment. This suggested to us that education is linked to our our treatment being accepted by the general public, and therefore the ongoing success of our project.
Only 45% of people had heard of synthetic biology and as this is what iGEM is about we decided this was another topic we should focus on when engaging with the public so that people can fully understand what we are trying to do.
In the same survey we found that only 29% of people had heard of Orphan diseases such as Wilson's disease. Lack of awareness is a massive problem for rare diseases as it makes it harder for people to be correctly diagnosed and funding for treatments of these diseases is harder to obtain as they only affect small numbers of people. We decided this would be something we could publicise that would have a beneficial impact beyond iGEM for people who have Wilson's disease and other rare diseases.
Our engagement can be split into three different levels; local, national and international activities. Within these categories, some activities were specific where we explained the exact mechanisms of our project and got people interested in the potential of synthetic biology, while others were more general and helped bring the general issues of our project to a wider audience.
Local
Natural History Museum Summer School
We hosted students aged 16-17 carrying out summer research projects at Oxford's Natural History Museum in our lab for the day. We gave them a presentation on our project and the relevant scientific techniques we used to do this. We designed specific resources such as genetic circuit trouble shooting exercises to enable them to put their new knowledge of synthetic biology into practice and then gave them a tour of our lab to show them what real research is like. We hope we have inspired some future iGEM participants through this!
Bang! Science Magazine
We wrote an article about our project for Bang! Science magazine, an Oxford student publication that aims "to bring current research at Oxford and elsewhere to people both within and outside of the university" and has a readership of over 7500 people. This raised awareness of Wilson's disease and the potential of synthetic biology to a wide audience and we hope it will encourage students to apply to participate in iGEM next year.
JackFM
We were interviewed by the radio station JackFM which covers Oxfordshire and has a weekly audience of 107 000 people. We used this opportunity to educate people about rare diseases and specifically Wilson's disease.
Biochemistry Department Cake Sale for the Wilson's Disease Support Group
We held a cake sale in the Biochemistry department to raise money for the Wilson's disease support group, helping patients in two ways, both financially and by raising awareness of their disease in one of the largest Biochemistry departments in the world which may encourage more research into Wilson's disease in the future.
XMU
We sent team XMU-China some of the parts made by last year's Oxford iGEM team that they were unable to obtain from the registry themselves. This enabled them to carry out their project successfully as they were able to use all the parts that they wanted.
SVCE_CHENNAI
We filled in team SVCE-CHENNAI's survey on lab techniques to pass on our experiences of protocols that worked, and others which didn't, in order to help them improve efficiency for other iGEM teams in the future.